Illness, chronic pain and physical trauma.

We invite your comments, reflections and questions on illness, chronic pain and physical trauma.

As you may know, Osteoporosis

As you may know, Osteoporosis is a disease that makes bones become brittle and more porous. One in four Canadian women over 50 have osteoporosis.

I'm here on behalf of Novartis for their new Osteoporosis Awareness campaign, On the Go Women, which aims to educate women on the disease and stresses the importance of managing the condition with treatment and a healthy lifestyle.

There are many factors that determine whether a woman is at risk of Osteoporosis. We’ve developed an Osteoporosis risk assessment tool for you to use and share. At this link you’ll also find a Personalized Conversation Starter – to use when discussing Osteoporosis with your doctor.

These tools are invaluable health resources for any women – even if they aren’t at a high risk for Osteoporosis themselves, they can be shared with mothers, sisters and friends who are.
We’ve also collected some recipes for Osteoporosis-fighting foods that might be of interest as well!

http://onthegowomen.ca/

Recent Health Issues Post Surgery

My second surgery for a total thyroidectomy ocurred on August 17th. I went into the operation room feeling good. However, coming out of the anaesthetic, I could not breathe. I have an asthmatic history from over 15 years ago. I have been free of that affliction for 15 yr.  I was given a Ventolin mask in the recovery room which seemed to restore my breathing passages. While in my hospital room I experienced some heaviness in the chest area but attributed it to the position my upper torso had been placed in for the surgery. I was given codeine which I had bever received before. I had an allergic reaction to it (red burning face and arm) and the hospital staff just let it burn itself out which took 9 hours. I believe the codeine masked the asthma symptoms that had manifested. The surgery ocurrred on Tuesday and I went home on Thursday. By Monday evening I could not breathe and made a hasty trip to the emergency room.  I had planned on seeing my GP but upon calling his office, I learned he had a heart attack! The doctor left as a back up was also away! At he hospital, the examining physician said that my chest area sounded as of I had swallowed a dozen kittens!

  A chest X-Ray was taken which must have been OK because nothing more was said concerning it However, my blood pressure was up and I was running a fever. The staff administered an oxygen mask, two ventolin masks, prednisone (5 day supply), and gave me two inhalers. I still really can't believe this happened. I have been asthma free for 15 years. This ocurred  on the Monday evening after the surgery (one week) Diagnosis, the stress of the surgery on my body and the anaesthetic remaining in the chest area ( I have one lung that is scarred from a previous medical condtion).

  As the second week presented itself , I began to feel what I would best describe as muscle spasms inside the chest area and behind the ribs. It was very frightening. I could inhale and exhale but I could not control the muscles spasms in the chest area. I was at a high anxiety level! I called the surgeon who said it was not connected ot the surgery and that I was to see my GP (who was not there) . I decided to go to a walk in clinic. It took 2 hr 40 minutes to see a doctor. Upon making an examination, he said that my glands were swollen and there was some (but not a lot) of wheezing in my chest. He said I had caught an infection that was making its way around. He has prescribed 10 days of antibiotics.

 The next day more symptoms, that I am now dealing with, have manifested with a mighty force. Also, my husband became ill with a cold. I now have a full head cold and a few chest symtoms. The chest symptoms are not as severe but some of them are still lingering.

   This was a surgery that should have been painless and easy. What a challenge I am going through. I have to watch my self that my anxierty does not overrule everthing that is going on. The changes towards healing are ever so slight so it is easy to go to a place that I do not want to be in.

   I am working hard with my psyche and hoping it will influence my body in a positive way.

Dear Recent Health Issues Post Surgery

I am shocked by all that you've been through! I'm so glad you pulled through and are slowly recovering. I am familiar with illness and the anxiety it can produce (for me it transports me right back to childhood and the loneliness of being a sickly child). I wish you much healing and peace as you recover over the next few weeks. 

Recent Health Issues Post Surgery

Well, I am seeing very tiny improvements but still challenged in different areas. My appoinment with an Endocrinologist was set for Oct. 1/10. I felt so ill on this past Monday that I decided to approach her office via telephone and see if the appointment could be moved up.  I now have an appointment tomorrow Sept 16th. I had blood work done yesterday in preparation.

I believe my body is reacting to the thyroid replacement medication. I have been experiencing extreme bouts of sweating, and worst of all, some horrific anxiety attacks. Also I can't sleep without sleeping medication which I don't like having to use.

The anxiety attacks just take over my entire being for about 10 to 15 minutes. I am not used to this and need to at least get some information on what to expect.

I am still fighting off the ends of the chest infection that casued the muscles in the chest area to go into spasm. Thankfully the spasm has ceased I am sure due to the use of antibiotics. I think I may need more antibiotics. I am however, so grateful for that improvement. I have a low energy level and need to ask about that. I am hopeful that some of my questions will be answered tomorrow. I need to fill in this specialist with an up to date account of what I have been through since this surgery.

I still do not have a GP to go to. Mine is now supposed to return tomorrow but according to his office, he is now backed up by 500 patients! I have been given an Oct 1st appointment. The questions I have for him will be very different. I need to know what his contingency plans are in the future. Another Doctor in his practise perhaps? Better back up when he is suddenly away due to un preventable circumstances?

I have already made some calls to find out how to get another GP. I have a good idea of the process involved and it will not be easy if I have to go this route.

I am frustrated and tired with all I have been through. I keep hoping there will be an end in sight very soon.

 

Recent Health Issues Update

Well, I think there may finally be an end in sight. I saw the thyroid surgeon yesterday. I have been dealing with pressure just below the sight of the incision. The pressure has been very intense as if someone is placing a very heavy weight on the area. It then spreads and goes below the breast area and sends pain through the entire area. It usually last about 2 days then clears. During those two days I am in a great deal of discomfort.

I expected the surgeon to be uninterested and that he would tell me to go to my GP.  This is not what happened! He froze my nasal passages and put a scope via the nasal passages into the surgical area. He said there was no damage to the vocal cords ,larnyx or trachea. Then he said "I think I know what is wrong". It was so refreshing to hear that after weeks of not getting any answers.

I have acid reflux and have been placed on medication. He said it may take over a week to improve but it will improve.

My voice is an octave lower than normal and he said that it will eventually return but may take awhile.

My energy level is improving with the new thyroid medication.

It would appear that the surgery  re-activated any chest area afflictions that I ever had in the past. I was diagnosed with acid reflux three years ago but have not had any symptoms for 2 1/2 years. Then of course there is the 15 year lapse of asthma that was re-activated. That has now cleared. My chest area obviously did not appreciate the physical assualt of the anaesetic and the surgery.

I am the type of person that can deal with anything if I know what it is. It is the unknown that I have problems with.

After many challenging weeks, I feel hopeful.

Health issues update

You have really been through so very much with your body and I hear how the unknown must have made it feel like this discomfort and pain would go on forever.  It can be hard to be in your body when it is under so much durress.  Thank you for reaching out to this community and sharing your process - I'm glad to hear that you finally feel some hope!

Using the power of the mind to help cope with pain

I came across this article on the web this morning and thought that our community would be interested in it:

http://futurity.org/health-medicine/imagination-helps-kids-cope-with-pain/

It's a study about using guided imagery/meditation to help kids cope with "functional stomach pain". The results of this study don't surprise me, but it's a nice reminder of how often we can use multiple techniques, particularly those engaging the mind/heart/spirit to work with physical pain and emotional distress in our lives.

Also, I was just moved to think of 1 in 5 kids living with chronic stomach aches. I was a stomach-ache-y kid myself due to the stress and anxiety in my family and I understand how my imagination helped me get through those dark places.

I'm taking a moment this morning to send loving thoughts and energy to my own stomach and that of every little kid and grown-up whose stomach is knotted up, for whatever reasons, this morning.

Thank your for your light and positive energy..

Thank you for your light and positive energy. I was also one of those stomach-ache-y kids.  My nerves were always shot due to the family dynamics and the responsibilities put upon me. Your suggestion of meditation is wonderful as well as imagination.   

that is beautiful, I join you

that is beautiful, I join you in your meta meditation this morning

Recent Health Challenges

I am over 60 but normally very active. Recently I have been given two health challenges that have affected my energy level. The first one is osteo arthritis of the knee joint. I havee been in a lot of pain  since Christmas with continued swelling and immobility of the joint. I have seen an Orthopedic specialist who has told me that I need a knee replacement because my joint no longer has any cushioning fluid in it. It is bone rubbing on bone! No wonder I have pain upon movement. I have opted to try an injection which I recently received. This injection is a natural ingredient that kick starts the body into producing cushioning fluid that will replace the fluid that I no longer have in the joint. It was very painful but I now just have to wait and see if it works. I see the specialist the end of August. I am holding this challenge that has been given to my body.

I have had thyroid nodules (lumps) for many years. They were controlled with medication. One of them has now doubled in size and the medical professionals do not know why this has happened. They have scheduled a biopsy for August 28th. I see the endocrinologist on Sept 21st. Depending on the results I may have to have a thyroidectomy which entails complete removal of the thyroid gland. I had to chase after the medical profession for the initial appointment and the biopsy date. The speicalist is not around in August so I must wait. I am holding this challenge that my body has levied and it is yet another unknown.

I am feeling angry at my body for doing this to me when I have been realtively healthy for quite some time. I am not good with unknowns and struggle to hold.

Recent Health Challenges Update

 The injection was unsuccessful. On April 22/10 I recieved a PKR (Partial Knee transplant). I am in recovery now. The surgery was unlike anything I had anticipated. I think the total mobility loss was the most challenging part. I was told the knee would be in a special bandage but was not told that it would be about a foot wide and begin at the thigh and end at the ankle. Due to the width of it, it was impossible to move the operated leg. The unoperated leg could not do very much due to the weight of the bandage. I found this very challenging . 

The loss of hospital bathroom priveleges was also devestating. Total reliance on hospital staff is not pleasant thing.

  I am now almost three months out of this surgery. I am not totally pain free but am without a cane now for almost four weeks.   My biggest enemy now is lack of patience with myself.   I want the pain to be totally gone and sometimes it is but not always. It is a different pain now. It is stiffness and spasm in the knee area as the nerve endings are trying to reconnect. A portion of the knee area is completely numb and apparently may take months to return to normal.  At times this is difficult and the pain needs relief so a pain medication (which I don't like using) is necessary.  I need to be patient with my body but instead the anger creeps back.    

  On August 17th I will return to the hospital for removal of the thyroid gland. The nodules (cysts) were non cancerous (fortunately) but I find myself dreading the surgery because I just don't want more surgery! If I do not have it removed and the nodules continue to grow, they may press on my voice box. I like to sing as a hobby. This would devistate me.

  I need patience and I need to find a way to be at peace with my body and not filled with anger around the challenges I have and those new ones that I am facing..                                                                                                                              

Recent health challenges: a response

Thank you for sharing your continued struggle with such honesty.  I can only partially imagine what you are going through in the loss and limitation of mobility - and your perseverance and strength are admirable.

Just recently I tore a calf muscle running and I am absolutely amazed at how debilitating it is - and it was not a complete rupture, but none the less it landed me on crutches for a week.  Its been just over a week now and while I've chucked the crutches, my frustration with the loss of mobility is high.  I'm actually a little in shock that my leg won't just "snap out of it".  Having to walk sooooooo slowly is just not something I'm used to; although, its an interesting experience to be made to slow down so much - it actually has made me pay a bit more attention to my surroundings, like when i'm walking to my car - something that usually takes less than a minute, now taking as much as 3 minutes or almost 10 when it comes to work. 

I also find the dependence on others a challenge - again it holds a mirror to how stubbornly independent I can be.  I suppose for me this is quite a learning about myself - and about the meaning and struggle with limits.

You are courageous

I think you are very courageous to have faced your health issues so head-on, to have chased down the medical professionals and advocated for yourself so strongly. I admire that.

I should be calling my doctor for an MRI of my left breast because they found a lump that they say is benign -- this happened to a friend of mine too, and 6 months later, full-blown breast cancer -- and somehow I am having a hard time making the call to my doctor.

As my father says, aging is not for wimps. As you wait for your knee to respond to the treatment, and for the appointments for your thyroid, I hope that you can enjoy the health you do have and enjoy your body. Thank you for posting your struggle.

 

Thank-you for your response.

Thank-you for your response. I have also been the route you are now on. I really do know the shock of finding a breast lump. I have had four removed. None of them were cancerous but I know the angst I felt. It is good that you know what you want to do. Often the fear of the discovery can cloud the thinking process but that has not happened for you.

I trust you will follow the path that seems to be the right one for you.

I really resonate with your

I really resonate with your anger around feeling like your body is letting you down...while I have not experienced the challenges you are facing, I have certainly had moments in my own life where I feel like my body is the "enemy".

It is very hard to hold unknowns and also to negotiate our medical systems; thank you for sharing and let us know how this journey goes.

Adjusting to living with a mental illness

The diagnosis was made about five years ago.  My life has changed in so many ways.  Many losses and changes - job, time, interaction with family, inability to do things that were routine.  The unpredictability of when the "down" times will come is very hard to deal with.  Medications have horrible side effects but I need to take them.  I'm trying hard to adjust and to tell myself that this is a different life but I can't help thinking about how things used to be. Sadness seems to be a constant in my life.

Thank you for your honesty

Thank you for your honesty and clarity. I was clinically depressed in my twenties and found that living with depression was a full-time job. I was also very anxious at the time and when I was able to sink into my deep sadness that was a relief.

It was good to be witnessed by my psychotherapist who was very patient and supportive and held hope for me when I was unable to. In time I started to think, well if my therapist says therapy helped her, then that's what I'm going to go on, and I continued to go to therapy and in time the depression and sadness lifted. But it wasn't an easy time.

My heart goes out to you. Thank you for sharing where you're at right now.

Thank you, first of all for

Thank you, first of all for your courage to post.  I have found this discussion board to be a safe and nurturing community where one's words and struggles are held with much care.  I am struck by your feelings of loss as you are grieving your old sense of self and being.  This must be a very difficult thing to adjust too.  In my work (albeit not with mental illness) I encounter those whose lives have been severely disrupted and the biggest challenge for them is indeed adjusting to a different life and in many cases to a new self. We often refer to them as "heroes" because it takes a tremendous amount of courage and perseverance to adjusting to a different life.  On a more personal level a number of years ago my life was disrupted by a disorder that made it very difficult to participate in life as I once had.  Like you, I had an inability to take part in things that were once simply routine or just normal everyday things.  Sometimes it is amazing how what one formerly has taken for granted becomes emotionally crippling or terrifying to now engage in.  So I am saying that I really hear your struggle and have some degree understanding of it.  Over the last number of years in my therapy, with the firm, steady and caring hand (heart) of my therapist I have been able to return to engaging in "life".  However, there are still issues that I see as mountains and challenges that I face that still frighten me.  I know that in time I too will also conquer these. Thank you again for sharing your heart and your struggle.

 

I am truely touched by your

I am truely touched by your post and how difficult and painful this change in your life is for you. I experienced depression for many years and I know how this kind of pervasive sadness feels. For me it was very isolating. My heart goes out to you in this difficult time. 

At the age  of 34, I was

At the age  of 34, I was diagnosed with adult on set asthma. I was having difficulty breathing and was very frightened. I could not understand what was happening. Each time I  visited the doctor, the attack had subsided and he could not find any symptoms. For anyone who has not experienced breathing problems, the asthmatic challenges could best be likened to closing off the nostrils, pursing the lips and sucking in air through a drinking straw. I can't describe the fear that accompanies the challenge of every breath inhaled or exhaled. Finally in the midst of  asthmatic symptoms, I managed to obtain a doctor's appointment and the diagnosis was given.

My condition steadily worsened and I was advised by my doctor that it was very difficult to treat adult on set asthma. This in itself was not encouraging. Eventually I was placed with a research immunologist at the University of Toronto's Gage Research Institute for Pulmonary diseases. For a period of five years I was steroid dependant in order to breath. Also I required a nebulizer which was a machine that allowed me to dispense my own ventolin mist treatments via a mask associated with the nebulizer. This eliminated a lot of the frequent trips to the hospital. I was also placed in a study group at the Gage Research institute testing a new medication.This medication seemed to assist me in the control of the worsening disease I was trying to live with. However, the medication was cortisone based and of course there were side effects. My life had become a constant challenge of balincing medications and their side effects.The prospects of an asthma free future were not even an option!

At the age of 46 years, a very toxic relationship took a toil on my life and I could not deal with it. I didn't know what to do but I wanted some relief. I could not deal with the after affects of this relationship as well as the daily asthmatic challenges in my life. I decided to look for someone to talk to. I thought perhaps if I could just talk to a trained professional maybe I could understand the after affects of the relationship . I was living in a constant state of fear trying to control my asthma and now I could not work my way though this relationship. I decided that it was worth a try and maybe it would help me to talk through what was happening to me.

I found a therapist but really did not know what to expect. I had never seen a therapist or counselor before so that in itself brought me some more fear. I lived my life in a constantly changing state of fear. My therapist encouraged me to talk about my childhood and my family history. I had no idea where this process was taking me but I felt hope for the first time in many years.

As my sessions continued, during the ensuing dialogue in one of them that uncovered a very traumatic incident that had remained unconscious in my memory, I began to cry ( I had not shed a tear since I was 6 years old). I cried for the years that had passed and the terror and fear I felt as a child. In a subsequent session I had a full blown asthma attack. My therapist was calm and her strength was evident as she counseled me through the attack with different breathing techniques. She was not frightened and her support took away a lot of my fear. Any asthmatic knows that a chaotic environment causes an asthma attack to increase in intensity. My therapist provided me with a calm supportive place, counseling, understanding and much more than I could really define.

As my journey into psychotherapy continued, each time I suffered an asthma attack ( and there were many more as I dialogued about my childhood) my therapist counseled me and helped me to work through attacks via breathing techniques.

With the help of my therapist. I came to understand that my adult on set asthma was a severe reaction to the massive fear from my childhood. She had helped me with the release of the fear that had constricted my lungs for many years. The emotional cause of my asthma had been exposed and it no longer controlled my life! Eventually, the traumatic childhood instances that emerged in my therapy sessions, no longer caused asthma. I began to notice that my breathing in every aspect of my life, was becoming easier and I did not need as much medication. I began to "forget" to take the medication with no effects to my breathing. I kept my routine appointments with the specialist at the University of Toronto. He could not find any symptoms of asthma. I told him that I had stopped taking the medication. He eventually advised me that he did not need to see me any more as there were no symptoms. My psychotherapist had taken me on a journey inside myself and providedcounseling along with a safe supportive environment which was very different from the trauma of my childhood.

I have been asthma free for 15 years. When I made the decision to find a therapist and begin psychotherapy,I could never have imagined the enormous results. My therapy changed my life emotionally and physically. There is a good chance that I would not have been alive to post this note.

I really connect with your

I really connect with your experience! I have lived with asthma since I was diagnosed at five years of age. I was told that I might grow out of it, but I never did. I went though allergy shots which helped. I used medication daily to keep it under control which kept my attacks down to monthly rather then daily. I learned to be tough around it - and only went to emergency if my ventolyn stopped working and I was out of options.

I never connected my asthma with my emotional state. I remember early on, my therapist telling me that my asthma would go away. That sounded to me like snake oil....yeh - therapy cures everything...so I ignored her words and chose to take from therapy what I could.

In therapy I began to connect with my fear. When that happened - my asthma would get worst. With my therapist I learnt how to breath, and then my asthma attack would subside. There came a point when I felt almost tipsy because for the first time I was breathing without restriction, and my lungs were absorbing their full quota of oxigen.

I haven't had a full on asthma attack in 4 years now. Occasionally I have a mild reminder - and I've learnt to pay attention to what it is telling me.When I face what ever it is that I am avoiding, my asthma disappears on its own. I still haven't ditched my Ventolyn inhaler - just in case. I used it maybe three times last year. I did finally throw out my other medication because it had expired - unused.

It is just over a year since

It is just over a year since I was diagnosed with cancer. Once I recovered from the shock, I struggled with the idea that I was no longer a "healthy person". It was a huge shift in my perception of myself. I thought I was invincible, but now I feel imperfect somehow. It affected my moods and I was frustrated to be falling apart after years of working on myself in therapy. Some days I still feel so old, but little by little I am getting used to the idea of living with cancer and the various symptoms that come with it.

Living with cancer Thank you

Living with cancer

Thank you for sharing where you are on your particular journey with cancer. So far I am a survivor of breast cancer and continue to live with the idea of it. I suppose everyone has to learn to live with where ever they are in the various stages and places with cancer in their own unique way. I hope that people will feel comfortable sharing their story about where they are with cancer or any other physical challenges in this story telling forum.

Deep self-reflection with myself, family, community friends, fellow psychotherapists, counselors, doctors of my choice and holistic health practitioners helped me with transformative elements in my journey with cancer.